Youngster Meeting
A European Youth Meeting was organised in 2011 to coincide with the German association’s yearly meeting in Rehe at the end of May, and young people from Portugal, Belgium and Germany attended.

Eurordis Federation of Networks
As a member of the Eurordis Federation of Networks, eni was represented by Geske Wehr at a meeting in June in Paris, where the advantages of online communities were discussed. Opportunities to network with other disease specific associations which together with the latest information regarding current studies of rare diseases, and in particular clinical studies proved to be of real value.