Who we are and what we do

We are a small patient association for ichthyosis founded in 2008. Our members are singles and families from Switzerland and nearby.

Our aim is to bring people into direct contact to enable the flow of information in between. Therefore we organise an annual meeting. We help to exchange addresses of persons in similar circumstances and of physicians who are specialized in ichthyosis.

In addition our patient association is member of ENI and EURORDIS. Our co-operation with the German Ichthyosis Association allows us to offer additional information.