ASPORI is the Portuguese association of Ichtyosis affected people.
We are Ichthyosis affected people living in Portugal. Since there is not much written information about this rare disease in Portugal we like to exchange as many experiences and treatment methods (e.g. creams, remedies, etc.) with other affected ones and doctors as possible.
Perhaps there are other affected people living close to your place? For sure we would be happy to join us.
Until now we have already organised some meetings of members from north and south of the country.
ASPORI is a non profit organisation interested in organising and promoting activities which contribute to improve quality of life of the Ichthyosis affected people.
Portuguese association of Ichtyosis affected people
The main objectives are:
- rise of awareness of Ichthyosis by participating in conferences, workshops, distributing flyers in schools, health centres and hospitals.
- Demand of governmental aid and fund for products being considerated as cosmetics in general, but in our case which are absolutely necessary for treatment of Ichthyosis.
- Promotion of social integration of Ichthyosis affected people, especially at schools.