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European Network on Ichthyosis
Suomen Iktyoosiyhdistys
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Finnish Ichthyosis Association (registered)
The Finnish Ichthyosis association, Suomen Iktyoosiyhdistys, is a national non-profit organization established in 1988. It is a self-help association which was set up to help individuals and families affected by ichthyosis.

What we do?
Our association is nationwide and our members live all around Finland. We have over 250 members including both people with ichthyosis and their close relatives - a new born with Ichthyosis always changes the life of the whole family.

During 20 years our main activity has been summer family camps and annual weekend meetings for our members. In these joint meetings the members are able to meet and share experiences and also get updated information about the treatments and social benefits.
We work on voluntary basis.

Iholiitto, the Finnish Central Organisation for Skin Patients
The Finnish Ichthyosis association is a member of Finnish Central Organisation for Skin Patients, Iholiitto, together with seven other associations. The central organisation has 15 employees. As a part of the central organisation there is also the Resource Centre for Rare Skin Diseases, which supports all patients with rare skin diseases and their families.
The central organisation publishes leaflets, brochures and the "Ihonaika" magazine together with the Finnish Psoriasis Association. The central organisation also arranges meetings and courses based on the needs of the member associations.

Contact information
Suomen Iktyoosiyhdistys ry
c/o Iholiitto ry
Karjanlankatu 2 B, 3. krs
00520 Helsinki
Phone: +358 (9) 7562 010

Finnish Ichthyosis Association
Finnish Central Organisation for Skin Patients